What's a phrase people say to survivors that you wish they'd stop — and what would you rather hear instead?

Explaining a rare cancer to people who've never heard of it — what do you say, and what's your go-to answer when you're too tired to explain?

Explaining a rare cancer to people who've never heard of it — what do you say, and what's your go-to answer when you're too tired to explain?

Appointment prep 📝 What do you bring to oncology visits — a notebook, a list of questions, a friend taking notes? Share what helps you leave feeling heard.

💬 A story from someone who's walked this road: "16 Years, 8 Tumors, 5 Recurrences: How Lisa Learned to Live With Cholangiocarcinoma as a Chronic Illness" Lisa Craine, Bile Duct Cancer (Cholangiocarcinoma) Symptoms: Pale stools, pain under the right breast, persistent fatigue, noted paleness Treatments: Surgeries (partial hepatectomy, additional surgeries for recurrence... Read it here: https://thepatientstory.com/patient-stories/bile-duct-cancer/lisa-c/ Has anything in your own journey felt similar? You're always welcome to share.

📚 Worth a read — To Freeze or Not to Freeze Reading Time: 3 minutesBy Megan Nicklay, 31, Sarcoma Trigger warning: infertility The odds are against you. They measure success in terms of 5-year-survival rates, but don’t Google that because it’s not good and [... via SC: https://stupidcancer.org/to-freeze-or-not-to-freeze/ (Informational only — always check with your care team on anything medical.)

💬 A story from someone who's walked this road: "16 Years, 8 Tumors, 5 Recurrences: How Lisa Learned to Live With Cholangiocarcinoma as a Chronic Illness" Lisa Craine, Bile Duct Cancer (Cholangiocarcinoma) Symptoms: Pale stools, pain under the right breast, persistent fatigue, noted paleness Treatments: Surgeries (partial hepatectomy, additional surgeries for recurrence... Read it here: https://thepatientstory.com/patient-stories/bile-duct-cancer/lisa-c/ Has anything in your own journey felt similar? You're always welcome to share.