Nevin S., Hodgkin Lymphoma, Stage 4
Symptoms:Bad cough, severe skin itch especially on the legs, extreme fatigue and dizziness, night sweats, lumps in the neck and armpitTreatments:Surgery (lymphadenectomy), chemotherapy
Nevin’s story is one of resilience, self-advocacy, and navigating life’s unexpected turns having been diagnosed with stage 4 Hodgkin lymphoma. His experience underscores the importance of trusting your instincts when it comes to your health.
Interviewed by: Nikki MurphyEdited by: Chris Sanchez
It all began with a relentless cough that didn’t improve even after Nevin quit smoking. Then came the intense itchiness, feeling like bugs crawling under his skin, and a persistent fatigue that made simple tasks overwhelming. Doctors thought he had asthma and eczema, but Nevin knew something was off. It wasn’t until he discovered a hard lump on his neck before his best friend’s wedding that everything changed. An urgent care doctor quickly connected the dots, leading to tests and a biopsy confirming stage 4Hodgkin lymphoma.
Through all the hospital visits, treatments, and life adjustments, like having to leave his job in Los Angeles and move back home, Nevin remained grounded. He found strength inself-advocacy, pushing for answers when the initial diagnoses didn’t sit right.Mental healthbecame a priority, as did surrounding himself with supportive people. Even on tough days, he focused on staying active and cherishing his good days.
Nevin emphasizes not letting cancer define who you are. The activities you love, the dreams you chase — they’re still part of you. Although his treatments brought significantside effectslike nausea, dizziness, and even red-colored urine, Nevin’s mindset stayed strong. He capitalized on his good weeks, maintained strong connections with loved ones, and kept hope alive.
Nevin also confronted tough topics likefinancial concerns,survivorship, andfertility, grappling with the possibility of not being able to have biological children post-chemo. It was a reminder of life’s unpredictability, but also of the privilege of choice, even when options are limited.
Nevin’s stage 4 Hodgkin lymphoma story is a testament to the power of hope, self-advocacy, and community. It’s about facing life head-on, even when the cards you’re dealt aren’t ideal. His experiences resonate with anyone navigating serious health challenges, highlighting the universal need to listen to your body, speak up, and hold on to what makes youyou.
Watch Nevin’s video to find out more about:
This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.
The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.
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Originally published on The Patient Story: https://thepatientstory.com/patient-stories/hodgkin-lymphoma/nevin-s/
