Self-Advocacy and Stage 4 Colon Cancer: Jay’s Story

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Jay W., Colon Cancer, Stage 4

Jay W., Colon Cancer, Stage 4

Symptom:Occasional presence of blood in stoolTreatments:Chemotherapy, surgery (installation of port and liver infusion pump, colectomy, hepatectomy, liver ablation, removal of liver infusion pump)

Jay, an ex-athlete and father of three, was diagnosed with stage 4 colon cancer when he was 43. It all started with a symptom many might overlook: intermittent blood in his stool. But rather than dismiss it, Jay consulted his doctor. This touched off a series of medical tests. A CT scan and colonoscopy revealed a mass, marking the beginning of his life-altering experience.

Interviewed by: Nikki MurphyEdited by: Chris Sanchez

Despite the shock, Jay embraced the process with resilience, navigating surgeries, chemotherapy, and countless medical procedures. His ordeal wasn’t just physical. The mental toll of living with stage 4colon cancerreshaped his identity. He describes feeling like the sole survivor of a plane crash, grappling withsurvivor’s guiltas he watched fellow patients succumb to the disease.

This emotional weight prompted Jay to seekmental healthsupport, helping him process not just survival but the loss and changes around him. He discovered that PTSD doesn’t only follow traumatic events like war — it can also stem from enduring a significant illness.

Throughout his treatment for stage 4 colon cancer, Jay focused onself-advocacy. He actively participated in treatment decisions and opted for advanced tests like theKRAS testto personalize his care. This approach to self-advocacy also meantembracing help from family and friends, acknowledging that support isn’t a sign of weakness but an integral part of healing. Jay noted that in his view, his wife and close family bore emotional burdens just as heavy as his own.

Physically, the long-termside effects of treatmentlinger. Jay describes his fatigue, altered taste sensations, and sensitivity to cold drinks— all reminders of what his body has been through. Yet, his mindset remains empowered. He stresses the importance of being active and cherishes the people who walked beside him, whether offering physical or emotional support.

Jay’s story isn’t just about surviving stage 4 colon cancer — it’s about what he did starting at his diagnosis. From the moment he received the news, Jay became a fierce advocate for his own care. He asked questions, sought out advanced testing, and made sure his voice was part of every treatment decision.

Watch Jay’s story and discover:

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

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Originally published on The Patient Story: https://thepatientstory.com/patient-stories/colorectal-cancer/colon/jay-w/

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